I didn't know wether to post again or not. I don't want to be that "sick" person who complains all the time. A lot of people have been asking about my disease and when I will be done with treatment so I just decided to write a post to explain everything that has happened recently.
In short I have at least 4 more month to go.
The last month has been a rough one. I have been on high doses on antibiotics since Sept 4. We upped my dose at the beginning of January and that is when it all really started. My stomach had been having trouble on and off with the antibiotics.....it is hard on your stomach but when I upped the meds my stomach gave way I couldn't keep anything down. We were going to try to stop the meds for a week or two and then start a different antibiotic but my stomach is shredded and I won't be able to take any antibiotics for a long while.
So we go to step two anti-malayria medication (literally anti fungal meds). It is a lot softer on my tummy but more toxic on my body. I will have to have a liver test once a month and an eye test to make sure my retinas aren't effected. I will get sicker at first but the hope is that it is faster acting than the antibiotics and in a few months I will feel better. If this med works there is a chance I could just stay on it a few times a week for the rest of my life and never have to do treatments again, just keep up with it so my disease won't ever resurface as badly as it is now. So it is all in all good news for the long term future, but frustrating for short term.
Ted and I are doing pretty good. It hasn't been easy I will tell you that! We have had some frustrating days and weeks but we are trying to stay positive because there isn't many other options at this point.
Hope this clarifies some of the questions everyone has been having don't hesitate to ask more I just wanted to help everyone understand a little more of what is happening.
2 comments:
Oh Steph. You just keep hanging in there. I am always thinking of you and praying for you. You are such a fighter. I just love you and hope that the icky phase passes quickly and you can start feeling better!
I love you two so much, and I know it will get better for you! Thank you for being such an inspiration to me (we still pay double fast offerings) I miss you, hope to see you sometime in the near future! Love you tons!!!
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