Monday, November 21, 2011

We are still here!

I noticed today how long it has been since I posted!  OH gosh!  Not much has gone on in terms of exciting things so not much to post.

Ted sold his car.  He is working like a mad man at Grand Canyon University and is in his last year of course work for his Doctorate at Pepperdine.  Almost done with school!

I got my real estate license toward the end of summer and then got the bad news that I was sick again.  At first it was just Lyme disease again so we went to a doctor to try to treat it.....that was when he found out I actually have never had Lyme disease but instead have a rare blood diseases that is attacking my white blood cells (a type of a Protozoa).

I started treatment in early September right when we had to move.  When you treat a blood disease, you get  a lot worse before you get better.  Usually the blood disease lays dormant in most your body but when you start treating it the disease starts to fight back, making your body a war zone...literally!  I am suppose to get to a point where it is so bad that it kills everything and then I will start feeling better....still waiting for that point.  I was suppose to hit the bottom by Thanksgiving time...but it doesn't look like that is going to happen.

Here is a picture of my blood test.  The blue is the blood, the white film is the disease (it literally makes your blood really thick, it is named for the greek word slime....), the white dots are my white blood cells in cased in the disease.


I have had tons of people asking so I thought I would just try to explain it a little better.  I am on huge doses of antibiotics that are trying to fight the disease.  The pain I feel is a muscle/joint pain mixed with bone pain.  And I have little to no energy.  But the best part is we know what it is and we can treat it!

Blood diseases never truly go away fully, but we can track it and maybe every 5-10 years (hopefully longer) treat it again.  Those treatments won't be as long or painful as this initial one, especially if we catch it fast.  

We are so lucky to be in warm Arizona during this treatment with lots of family and friends helping.  It has made these last few months so much easier!  The worst part of the whole thing...I can't drive!  It really has been worse than the pain some days!  Ha ha...how is that for dramatic?  I don't have energy to go anywhere anyway...but just knowing I can't drive has been so hard.

Ted has always been so supportive, he is such an amazing guy for working 10-12 hours a day coming home to take care of me and fitting studying in somewhere along the lines.  We are just really lucky to be in a great place and we feel so loved!  So thank you to everyone!  

I am not shy about talking about my disease so ask away.  I just don't love to talk about it on Facebook or the blog every day because then I feel like that "sick" person.  I will be better before you know it!  Here's to being healthy!  


6 comments:

Bizzle said...

Mixed emotions about this: I'm glad you FINALLY figured out what's ailing you, but still sad that you're STILL SICK. You are the bravest, most optimistic person I know. Seriously, you're an inspiration. Love you two.

Angela said...

You're amazing Stefanie. I'm so sorry you have to go through this, but I'm grateful they know what it is and how to treat it. You are such a great example in so many ways. Keeping you in our prayers & hoping you feel better (and can drive again) soon!

Brent and Lauren said...

Oh I am so glad they found out what was going on. We will be praying for you and that you can recover soon! You are so positive and simply amazing. What a good Husband you have too!

Caralee said...

Oh Stef, I am SO sorry (for both you and Ted), this is it right though?! No more sickness once this is taken care of. I love you so much! Now that I have a phone you can call me anytime or I will call you! (253) 503-0120 Love ya tons!!

Sam said...

Thanks for posting Stephanie

My family loves yours and even though we are South of you do not hesitate to call on us.

Sam

nathalia said...

Thank you so much for sharing so much of yourself. Not just about your trials and illnesses but also all your positive energy and your goodness. We love you guys! Hugs and prayers for a speedy recovery... xxoo!